For about a month now, I have been having pain in my bones - mainly in my ribs, my back and my feet. When I sit for a little while and then get up, my walking is a little painful. The pain is not unbearable but it is uncomfortable.
I have had a high PTH for a few months now and have been on cinacalcet. We're still trying to arrive at a 'correct' dose. My PTH is around 640 now. I have also had a low Phosphorus since I've started nocturnal.
I saw my neph a couple of days back and he suspects that the Vitamin D levels are off. I used to take Alpha D3 capsules before I got onto nocturnal. The plan is for me to get a Vitamin D supplement if the level is low.
I posted this problem on the Home dialysis central forums and the 'I hate dialysis' forums. There are others who have had a similar problem and Vit D supplements did help. Maybe I should start off on it right away. But then the blood test might show a wrong value. So, I will wait till the test is done.
In one of the responses to my question, I was told that people on nocturnal should not take cinacalcet. Or so the responder had heard at a conference a while back. I am trying to look this up on the internet. I have not heard of this before. And neither have my treating docs.
Comments
(Brand name : Rolsical)
It will help in PTH related conditions.
I don't think one injection would help. Usually a course is prescribed. A GP should be able to help with this. You don't need a nephrologist or a neurologist for now, IMHO.
Did you check your Vit D level after the injection?
Please check it again and then go back to the GP and ask him.
Vit D deficiency is becoming like an epidemic these days. Also try to spend more time in the sun - the best natural source of Vit D. Go for a walk, try sitting where there's sunlight etc.
Take care, my friend!